| Award of Excellence in Education from the Premier's Council on the Status of Persons with DisabilitiesDr. Megan Strickfaden received the Award of Excellence in Education from the Premier's Council on the Status of Persons with Disabilities based on her inclusive research and innovative design solutions. University of Alberta | Scientific Excellence - Leadership | 2016-12-01 | Megan Strickfaden |
| IJCC Editors Choice ArticleThe article we wrote, 'Life course trajectories and family care', has been selected as one of the International Journal of Care and Caring's new Editors’ Choice articles, and is featured on their website. https://policy.bristoluniversitypress.co.uk/journals/international-journal-of-care-and-caring/editors-choice University of Alberta | Scientific Excellence - Leadership | 2019-09-05 | Norah Keating, Jacquie Eales |
| International Journal of Care and Caring top 5 most read articles in 2019Our article was among the top five most read in the 2019 volume of International Journal of Care and Caring
Life course trajectories of family care [Open Access]
Authors: Norah Keating, Jacquie Eales, Laura Funk, Janet Fast and Joohong Min
https://doi.org/10.1332/239788219X15473079319309 University of Alberta | Scientific Excellence - Leadership | 2020-02-04 | Norah Keating, Jacquie Eales, "Laura Funk", Janet Fast, "Joohong Min" |
| Norah Keating conferred as Fellow of the UK Academy of Social SciencesBy order of Council, the Award of Fellow of the UK Academy of Social Sciences (FAcSS) was conferred on Dr. Norah Keating for her contribution to social science. Dr. Keating was among 51 new Fellows to the Academy who are so highly accomplished in their fields. Dr. Keating was nominated by the British Society on Gerontology and selected following a robust peer review. As a Fellow, she is one of some 1400 leading professionals in the social sciences, recognized for the excellence of their work and its applications in academia, business and the public sector. University of Alberta | Scientific Excellence - Leadership | 2020-03-26 | Norah Keating |
| Norah Keating receives 2017 IAGG Presidential AwardNorah Keating, and AGE-WELL Network Investigator, received an International Association on Gerontology and Geriatrics (IAGG) Presidential Award on July 23, 2017 at the World Congress in San Francisco. The award recognizes Dr. Keating's international research and capacity building activities on the global social issues of ageing. University of Alberta | Scientific Excellence - Leadership | 2017-07-25 | Norah Keating |
| CIRCLE Blog Post: My time with the Sustainable Care TeamI was able to participate in a 2-month long international exchange with fellow AGE-WELL colleagues from the University of Sheffield. I had the opportunity to collaborate with partners from the Economic and Social Research Council (ESRC) funded, Sustainable Care: connecting people and systems programme under the supervision of work package co-lead and leading expert in the field of transnational migration and care, Dr. Majella Kilkey. Working with Dr. Kilkey allowed me to further my understanding of my own research into transnational care and the impact of global ageing on Canadian families. She helped me formulate a policy scan framework in which to further explore the current state of migration regimes from sending and receiving countries that impact aging Canadian families as they negotiate care of loved ones throughout the life course. This work will be pivotal not only in my PhD dissertation research, but also in staking my claim as one of the burgeoning early career researchers on migration and care in Canada. | KTEE - Knowledge Mobilization | 2019-09-11 | Andrew Magnaye |
| How can we sustain family caregivers' capacity to care? What caregivers need and how technology can help provide itA blog post was published to accompany a BMC Geriatrics article. The two were published in tandem on February 27, 2020. Our partners across Canada helped promote the blog post by sharing on their social media. Partners involved included Caregivers Alberta, Caregivers Nova Scotia, HUDDOL, Government of Alberta Caregivers Working Group, University of Alberta | KTEE - Knowledge Mobilization | 2020-02-27 | Jacquie Eales, Janet Fast, Andrew Magnaye |
| Recognizing carers in Canada and understanding their barriers to technology adoptionWorking on behalf of WP2, Jacquie Eales and Janet Fast, with input from Louise Demers and Michelle Plante, wrote a blog post for the APPTA web site. The blog was prepared for and posted on April 2, 2019 to recognize National Carers Day in Canada and highlight the collective work of WP2 (and DATCares) in understanding and addressing carers' barriers to technology adoption. University of Alberta, Université de Montréal, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | KTEE - Knowledge Mobilization | 2019-04-02 | Jacquie Eales, Janet Fast, Louise Demers, Michelle Plante |
| Aging following spinal cord injury. | Scientific Excellence - Advancing Knowledge | 2014-07-01 | Mortenson WB, Sakakibara BM, Miller WC, Wilms R, Eng JJ. |
| Misurare l’impatto delle tecnologie assistive sui caregiver in famiglia. | Scientific Excellence - Advancing Knowledge | 2013-01-01 | Demers L & Mortenson WB |
| Outcome Measures | Scientific Excellence - Advancing Knowledge | 2006-01-01 | |
| Outcome measures. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2008-01-01 | Miller WC, Aubut JL, Connolly SJ, Curt A, Elliott S, Hsieh JTC, Ben Mortenson, Noonan V, Noreau L, Orenczuk SG, Sakakibara BM, Sawatzky B, Steeves J, Wilkinson S, & Wolfe DL |
| Pressure ulcers following spinal cord injury University of British Columbia | Scientific Excellence - Advancing Knowledge | 2008-01-01 | Miller WC, Aubut JL, Connolly SJ, Curt A, Elliott S, Hsieh JTC, Ben Mortenson, Noonan V, Noreau L, Orenczuk SG, Sakakibara BM, Sawatzky B, Steeves J, Wilkinson S, & Wolfe DL |
| ‘Innova’ digital application and database for designers to innovate for carersStrickfaden, M., Fiorentino, C., Martin, M., Eales, J. & Fast, J. (2020). ‘Innova’ digital application and database for designers to innovate for carers. In P. Langdon, J. Lazar, A. Heylighen & H. Dong (eds), Designing for Inclusion: Inclusive Design; Looking towards the future (pp 35-46). Geneva, Switzerland: Springer Nature. University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-05-01 | Megan Strickfaden, Carlos Fiorentino, Mackenzie Martin, Jacquie Eales, Janet Fast |
| A conceptual model of assistive technology outcomes for older assistance users and their informal caregivers Université de Montréal | Scientific Excellence - Advancing Knowledge | 2010-10-01 | Mortenson WB, Louise Demers, Fuhrer M |
| A Novel Assistive Technology Intervention for Older Adults with Disabilities and their Informal Caregivers : Results from a preliminary Randomized Control Trial (Prix de l’Institut du vieillissement la meilleure affiche, catégorie des postdoctorants) University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-11-01 | Ben Mortenson |
| A scoping review of mobility scooter-related empirical studies University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-06-01 | Ben Mortenson |
| An experimental study of the impacts of assistive technology on users and their informal caregivers | Scientific Excellence - Advancing Knowledge | 2012-10-01 | WB Mortenson |
| Assistive technology and climate change | Scientific Excellence - Advancing Knowledge | 2011-05-01 | Mortenson WB |
| Beyond the borders of ability, age, and gender: An intersectional analysis of nursing home life | Scientific Excellence - Advancing Knowledge | 2008-06-01 | Oliffe Mortenson WB |
| CanWheel:A Canadian research initiative to improve power wheeled mobility | Scientific Excellence - Advancing Knowledge | 2015-02-01 | W.B. Miller |
| Challenges and strategies to improve recruitment and retention of the frail elderly in research studies: A systematic review University of British Columbia | Scientific Excellence - Advancing Knowledge | 2013-06-01 | Véronique Provencher, Ben Mortenson, Dagenais M |
| Collision avoidance and path planning technologies for older wheelchair users: Thoughts of occupational therapists | Scientific Excellence - Advancing Knowledge | 2011-06-01 | Krista Best, Mortenson W, & Hurd Clarke L |
| Demographic factors that predict bout mobility in manual wheelchair users | Scientific Excellence - Advancing Knowledge | 2015-02-01 | M.K. MacGillivray |
| Development and preliminary evaluation of the caregiver assistive technology outcome measureINTRODUCTION: Assistive technology is often recommended with the aim of increasing user independence and reducing the burden on informal caregivers. However, until now, there has been no tool to measure the outcomes of this process for caregivers. OBJECTIVES: To describe the development of the Caregiver Assistive Technology Outcome Measure (CATOM), a tool developed to measure the impact of assistive technology interventions on the burden experienced by informal caregivers, and to undertake preliminary evaluation of its psychometric properties. METHODS: Based on an existing conceptual framework, existing measures were reviewed to identify potential items in a preliminary version of the measure. Cognitive interviewing was used to identify items needing clarification. A revised CATOM and manual were then reviewed by clinicians. After revising some items based on the interview findings, the measure was piloted as part of an intervention study examining the impact of assistive technology on the users' informal caregivers (n = 44). RESULTS: Based on a review of 12 existing measures, a 3-part measure was developed and questions were refined based on cognitive interviews with informal caregivers and feedback experienced assistive technology practitioners. For the activity-specific and overall portions of the measure, the 6-week, test-retest intraclass correlations coefficients were 0.88 (95% CI 0.64-0.96) and 0.86 (95% CI 0.60-0.95), respectively. The CATOM data correlated as hypothesized with other measures. CONCLUSION: The CATOM is a promising measure with good content validity and encouraging psychometric properties. | Scientific Excellence - Advancing Knowledge | 2014-11-01 | W B Mortenson |
| Development of a scooter training program for community-dwelling older adults | Scientific Excellence - Advancing Knowledge | 2013-05-01 | Hoag E, Higgins R, Mortenson WB, Emery R, Joyce L |
| Développement d’une version canadienne française du Wheelchair Outcome Measure (WhOM-F): fidélité et applicabilité par mode téléphonique pour les utilisateurs d'aides à la mobilité motorisées Université de Montréal, Université Laval | Scientific Excellence - Advancing Knowledge | 2008-04-01 | Claudine Auger, Gélinas I, Francois Routhier, Mortenson WB, Miller WC, & Demers L |
| Difficultés et stratégies de recrutement et de rétention des personnes âgées fragiles dans le cadre de projets de recherche: une revue systématique | Scientific Excellence - Advancing Knowledge | 2013-04-01 | Véronique Provencher, Mortenson WB, Dagenais M |
| Discharge and supportive discharge criteria for Canadian Dementia care units | Scientific Excellence - Advancing Knowledge | 2013-05-01 | Bishop AM, & Mortenson WB |
| Efficacy of a user-caregiver assistive technology intervention: Preliminary results | Scientific Excellence - Advancing Knowledge | 2010-05-01 | Demers L Mortenson WB |
| End-user involvement in the development and evaluation of the caregiver assistive technology outcome measure Université de Montréal | Scientific Excellence - Advancing Knowledge | 2011-08-01 | Mortenson WB, Louise Demers |
| Experiences of power mobility use in older adults over time: Preliminary findings Université de Montréal | Scientific Excellence - Advancing Knowledge | 2011-11-01 | Mortenson WB, Louise Demers, Landry A-P, Luts A, Soles C |
| Exploratory Validation of a Multidimensional Power Mobility Outcomes Toolkit University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | Ben Mortenson |
| Exploratory Validation of a Multidimensional Power Mobility Outcomes Toolkit University of British Columbia, Université de Montréal, Université Laval | Scientific Excellence - Advancing Knowledge | 2015-09-01 | Ben Mortenson, Louise Demers, Paula Rushton, Claudine Auger, Miller WC, Francois Routhier |
| Fidélité de la version canadienne française du wheelchair outcome measure (whom-f) par mode téléphonique | Scientific Excellence - Advancing Knowledge | 2009-06-01 | Gélinas I Auger A |
| How assistive technology use by older individuals with disabilities impacts their informal caregivers Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2012-05-01 | Mortenson WB, Louise Demers, Jeff Jutai, Fuhrer MJ, Lenker J, & DeRuyter F |
| Impacts des aides techniques auprès des usagers et de leurs proches-aidants University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-11-01 | Ben Mortenson |
| Impacts des aides techniques auprès des usagers et de leurs proches-aidants: Résultats préliminaires Université de Montréal, University of Montreal | Scientific Excellence - Advancing Knowledge | 2010-10-01 | Louise Demers, Mortenson W, Michelle Plante, Raymond M-H, & CATOR Team |
| Impacts des aides techniques auprès des usagers et leurs proches aidants University of Montreal, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2009-11-01 | Mortenson W, Gelinas‐Bronsard D, Roy L, Michelle Plante, McCabe D, Louise Demers |
| Impacts of assistive technology interventions on informal caregivers of adults with chronic physical impairments: A systematic review Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2010-10-01 | Mortenson WB, Louise Demers, Jeff Jutai, Fuhrer F, Lenker J, DeRuyter F |
| Intelligent power wheelchairs for residents in long-term care facilities: Potential users' experiences and perceptions. Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-06-01 | Paula Rushton, Ben Mortenson, Pooja Viswanathan, Wang RH, Hurd Clarke L |
| Introducing a tool for measuring the impact of power mobility use by older adults on their family caregivers Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-10-01 | Louise Demers, Rushton PW, Ben Mortenson, Chan E, Bill Miller |
| Is aging disabling? Thoughts on the social construction of aging | Scientific Excellence - Advancing Knowledge | 2007-11-01 | Mortenson WB |
| Justlike driving a car: Perceptions of power mobility safety. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2003-10-01 | Ben Mortenson |
| Long-Term Care Facility Residents’ Initial Experiences and Perceptions of Intelligent Power Wheelchairs Université de Montréal, University of British Columbia, University of Toronto | Scientific Excellence - Advancing Knowledge | 2016-03-01 | Paula Rushton, Ben Mortenson, Pooja Viswanathan, Rosalie Wang, Clarke LH |
| Longitudinal experiences of power mobility use in older adults | Scientific Excellence - Advancing Knowledge | 2011-06-01 | Luts A, Soles C, Mortenson WB, Miller WC |
| Measuring the effectiveness of assistive technology in community and home environments: Capturing the perspectives of users and caregivers University of Ottawa, Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2010-05-01 | Jeff Jutai, Louise Demers, Ben Mortenson, "DeRuyter, F" |
| Mixed Effects of Older Adults’Use of Power Wheelchairs on their Informal Caregivers University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2013-04-01 | Rushton PW, Ben Mortenson, Louise Demers, Claudine Auger, Élise Busilacchi, CanWheel Research Team |
| Mixed methods research in occupational therapy: A review and critique | Scientific Excellence - Advancing Knowledge | 2007-07-01 | Mortenson WB, & Oliffe JL |
| Mobility choices among community-dwelling, older adult, power wheelchair users University of British Columbia | Scientific Excellence - Advancing Knowledge | 2013-05-01 | Ben Mortenson, Luts A, Soles C, Bill Miller, Hammell KW |
| No place like home? Surveillance technologies and the meaning of home in old age Simon Fraser University | Scientific Excellence - Advancing Knowledge | 2013-11-01 | Andrew Sixsmith, Mortenson WB, Savage R |
| Non digital game playing among older adults Simon Fraser University, KITE Research Institute at University Health Network | Scientific Excellence - Advancing Knowledge | 2014-10-01 | Mortenson WB, David Kaufman, Andrew Sixsmith, Nguyen A |
| Novel assistive technology intervention for older adults with disabilities and their informal caregivers: Results from a preliminary randomized control trial Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2012-10-01 | Mortenson WB, Louise Demers, Jeff Jutai, Fuhrer MJ, Lenker J, & DeRuyter F |
| Observed patterns of wheelchair use by nursing home residents | Scientific Excellence - Advancing Knowledge | 2008-06-01 | Mortenson WB, Oliffe J, Backman C & Miller WC |
| Occupation and nursing home residents: opportunities, obstacles and alternatives | Scientific Excellence - Advancing Knowledge | 2008-10-01 | Mortenson WB, Oliffe JL, Backman C, & Miller WC |
| Occupational science: Reflecting back, moving forward | Scientific Excellence - Advancing Knowledge | 2007-07-01 | Mortenson W, Laliberte-Rudman D, Shaw L, & Townsend E |
| Older adults’ experiences of power mobility: A longitudinal mixed-methods study Université de Montréal | Scientific Excellence - Advancing Knowledge | 2012-06-01 | Chamberlain A, Zonneveld S, Mortenson WB, Miller WC, Paula Rushton, Louise Demers |
| Parents’ Experiences with Plagiocephaly and Treatment Decisions University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | K Koehn, Ben Mortenson |
| Placing occupational science as core foundation in occupational therapy curricula | Scientific Excellence - Advancing Knowledge | 2008-06-01 | Shaw L, Laliberte-Rudman D, Mandich A, Mortenson WB, Davis JA, Townsend T, & Polatajko H |
| Portail télésanté pour les proches aidants d’usagers d’aides techniques : Protocole Research Institute of the McGill University Health Centre, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-09-30 | Dominique Gélinas-Bronsard, Sara Ahmed, Ben Mortenson, Cassioppée Guay, Alexander Moreno, Claudine Auger |
| Power mobility: Experiences of users over time Université de Montréal | Scientific Excellence - Advancing Knowledge | 2012-10-01 | Mortenson WB, Louise Demers, Miller WC, Paula Rushton |
| Powered mobility with collision avoidance technology for older adults: Perspectives of users, prescribers and caregivers and the implications for design University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-10-01 | Wang RH, Korotchenko A, Ben Mortenson, Hurd Clarke L |
| Predictors of life satisfaction among long-term care residents who use wheelchairs as a primary means of mobility | Scientific Excellence - Advancing Knowledge | 2009-10-01 | Mortenson WB, Miller WC, Backman CL & Oliffe JL |
| Predictors of the frequency of engagement in occupation among long-term care residents who use wheelchairs as their primary means of mobility | Scientific Excellence - Advancing Knowledge | 2010-05-01 | Mortenson WB, Miller WC, Backman CL, & Oliffe JL |
| Predictors of wheeled mobility in individuals in residential care | Scientific Excellence - Advancing Knowledge | 2009-07-01 | Mortenson WB, Miller WC, Backman CL, & Oliffe JL |
| Prevalence and predictive factors of wheelchair seating need among long term care residents | Scientific Excellence - Advancing Knowledge | 2010-10-01 | Ed Giesbrecht, Miller WC, & Mortenson B |
| Provision of assistive technology: Partnering with caregivers for better outcomes University of Montreal | Scientific Excellence - Advancing Knowledge | 2015-05-01 | Michelle Plante |
| Provision of assistive technology: Partnering with caregivers for better outcomes University of Montreal, University of British Columbia, University of Ottawa, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2014-10-01 | Michelle Plante, Ben Mortenson, Jeff Jutai, Fuhrer M, Claudine Auger, Louise Demers |
| Recrutement et rétention des personnes âgées fragiles dans des projets de recherche | Scientific Excellence - Advancing Knowledge | 2013-10-01 | Tanguay-Garneau L, Véronique Provencher, Mortenson WB, Dagenais M |
| Reliability and validity of the Wheelchair OutcomeMeasure (WhOM). | Scientific Excellence - Advancing Knowledge | 2006-06-01 | Miller Garden J. |
| Reliability of a power mobility assessment and safety guideline | Scientific Excellence - Advancing Knowledge | 2007-07-01 | Hansen E, Brelsford W, & Mortenson WB |
| Selecting activity and participation outcome measures for wheelchair users based on the ICF | Scientific Excellence - Advancing Knowledge | 2008-03-01 | Mortenson WB, Miller WC, & Auger C |
| Supporting informal caregivers with personal and environmental emergency response systems: The HOME-Tech Study. | Scientific Excellence - Advancing Knowledge | 2013-10-01 | Tatarkiewicz I, Mortenson WB, McInnis A, MacNeil T, Michelle Lowe, Et al. |
| Taking control with tilt-in-space wheelchairs: An exploratory study of their use in residential care | Scientific Excellence - Advancing Knowledge | 2014-10-01 | Shankar S & Mortenson WB |
| The Biomechanics Of Using A SmartDrive For Wheelchair Propulsion University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-10-01 | S Wong, Ben Mortenson, "Bonita Sawatzky" |
| The development of client-centred guidelines for power mobility safety University of British Columbia | Scientific Excellence - Advancing Knowledge | 2002-03-01 | Ben Mortenson, Boily J, Crawford E, Desharnais G, Elgood B, Odell L, & Miller B |
| The Efficacy of Scooter Training for Adults: A Pilot Study. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | Ben Mortenson |
| The ethics of gerontechnology: From intervention study to implementation in practice Lawrence Normie Consulting | Scientific Excellence - Advancing Knowledge | 2010-05-01 | Lawrence Normie, Savage R, & Mortenson WB |
| The impact of older adults' use of power wheelchairs on their informal caregivers Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2012-05-01 | Paula Rushton, Louise Demers, Ben Mortenson |
| The meaning of mobility: Perceptions of wheelchair users. | Scientific Excellence - Advancing Knowledge | 2006-05-01 | W.B. Mortenson |
| The nature and use of surveillance technologies in residential care Simon Fraser University | Scientific Excellence - Advancing Knowledge | 2013-06-01 | Woolrych R, Andrew Sixsmith, Mortenson WB, Steve Robinovitch, & Feldman F |
| The power of observation: Theories of surveillance and ambient assistant living | Scientific Excellence - Advancing Knowledge | 2011-10-01 | Mortenson WB, Woolrych R, & Sixsmith A |
| The Wheelchair Outcome Measure: a client specific outcome measure of wheelchair intervention. | Scientific Excellence - Advancing Knowledge | 2006-03-01 | Mortenson WB, Miller WC, Garden J, & Miller-Polgar J |
| The wheelchairprescription process: perceptions of clients, prescribers and familymembers/care givers | Scientific Excellence - Advancing Knowledge | 2006-07-01 | W.B. Mortenson |
| Theories of surveillance and ambient assistive living | Scientific Excellence - Advancing Knowledge | 2013-06-01 | Mortenson WB, Woolrych R, & Sixsmith A |
| Theorising the impact of surveillance technologies on older people Simon Fraser University | Scientific Excellence - Advancing Knowledge | 2012-11-01 | Andrew Sixsmith, Mortenson WB, Woolrych R |
| Tilt-in-space wheelchairs in nursing homes: An exploratory study University of Waterloo | Scientific Excellence - Advancing Knowledge | 2008-06-01 | Jim Wallace, Shankar S, & Mortenson WB |
| Using qualitative data to select variables for a study of predictors of mobility and participation among wheelchair using nursing home residents | Scientific Excellence - Advancing Knowledge | 2008-03-01 | Mortenson WB |
| Using qualitative data to select variables for a study of predictors of mobility and participation among nursing home residents | Scientific Excellence - Advancing Knowledge | 2008-10-01 | Mortenson WB, Miller WC, Oliffe JL, & Backman C |
| Using the International Classification of Functioning, disability and health (ICF) to reveal the participation aspirations of middle-aged and older adults who are receiving power mobility devices Université de Montréal | Scientific Excellence - Advancing Knowledge | 2008-08-01 | Claudine Auger, Louise Demers, Gélinas I, Mortenson WB, & Miller WC |
| Validating the Wheelchair Outcome Measure for residents in long-term care | Scientific Excellence - Advancing Knowledge | 2012-06-01 | Parvaneh S, Mortenson WB, Miller WC |
| Wheelchair mobility in older adults. Are we ready to roll? University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2010-05-01 | Ben Mortenson, Claudine Auger, Smith C, Paula Rushton, & Viswanathan P |
| Wheelchair outcome measures: Review and critique | Scientific Excellence - Advancing Knowledge | 2007-06-01 | Miller WC, Mortenson WB, & Auger C |
| Wheelchair participation in individuals with spinal cord injury Université de Montréal | Scientific Excellence - Advancing Knowledge | 2008-03-01 | Paula Rushton, Miller WC, Garden J, Mortenson WB |
| Wheeled mobility and social participation | Scientific Excellence - Advancing Knowledge | 2014-03-01 | Mortenson WB |
| Wheeled mobility in older adults: Wheeling into the future University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2009-06-01 | Bill Miller, Ben Mortenson, Claudine Auger, & Smith C |
| “There’s lots of compromises”: Experiences of Canadian power mobility users over time Université de Montréal | Scientific Excellence - Advancing Knowledge | 2012-06-01 | Mortenson WB, Paula Rushton, Louise Demers, Miller WC |
| An end to the old ways of bankingJanet Fast was interviewed by Joel Schlesinger for an article published in the Winnipeg Free Press. University of Alberta | KTEE - Knowledge Mobilization | 2020-05-23 | Janet Fast |
| Being older not main reason some Canadians struggle with technologyJanet Fast was interviewed by Helen Metella, Communications Associate for the Faculty of Agriculture, Life and Environmental Sciences about her research on the digital literacy of older workers. The article was written and included a comment from Andrew Sixsmith as one of AGE-WELL's Scientific Directors. It was posted to the Faculty web site on June 19, 2017. Being older not main reason some Canadians struggle with technology: Study shows it's more about income, education, opportunity. The article is posted at: https://www.ualberta.ca/agriculture-life-environment-sciences/alesnews/2017/june/being-older-not-main-reason-some-canadian-workers-struggle-with-technology University of Alberta | KTEE - Knowledge Mobilization | 2017-06-19 | Janet Fast |
| Caregivers speak up: an in-depth online survey reveals their concerns, hope and dreamsAndrew Magnaye, doctoral HQP, was interviewed for an YouAreUnLTD article. The article, written by Jane Mundy, was published online on January 30, 2019. The interview and subsequent article was prompted by Andrew's winning Science Slam presentation at the AGE-WELL 2018 conference in Vancouver. | KTEE - Knowledge Mobilization | 2019-01-30 | Andrew Magnaye |
| Caregiving can last for decades, new research showsUnderstanding different lifetime patterns of caregiving can inform supportive policies to help people cope, say UofA researchers.
The article was intended to promote a new study published in Aging and Society. University of Alberta | KTEE - Knowledge Mobilization | 2020-09-14 | "Bev Betkowski", Jacquie Eales, Janet Fast |
| More than a quarter of young Canadians aged 15 to 19 are caregivers, research showsJanet Fast was interviewed by Bev Betkowski from the University of Alberta's media affairs office. The subsequent article was published November 25, 2019 in Folio. Caring for family members or friends poses challenges to teens’ health, social development and educational prospects, U of A researcher finds. University of Alberta | KTEE - Knowledge Mobilization | 2019-11-25 | Janet Fast |
| Technology's impact 'mixed' for unpaid caregiversArticle in Folio, a University of Alberta online publication, March 28, 2018. Technology can be helpful to people caring for loved ones, but it can also be complicated and costly—something UAlberta researchers want to remedy by consulting caregivers on what they need. University of Alberta | KTEE - Knowledge Mobilization | 2018-03-28 | "Bev Betkowski", Jacquie Eales, Janet Fast |
| Caregivers in Nova Scotia: economic costs and contributionsCo-created with Angus Campbell of Caregivers Nova Scotia, and based on provincial-level analysis of the 2012 General Social Survey, the infographic is used in Caregiver NS's advocacy work. Angus wrote: "My team is so impressed. I presented them to my Board on Saturday. I am forwarding them to the NS Dept of Health and Wellness (our funder) as well as the Continuing Care branch of the NS Health Authority. I also have some meetings with Emergency Health Services, Geriatrics, and Acute Care coming up." Caregivers NS uploaded these to their website (they get over 9,000 hits per month), emailed them out to their entire distribution list of 1500 people, and posted on their social media accounts resulting in 2000 views so far.
The infographic is posted on their website here https://caregiversns.org/news/
University of Alberta | KTEE - Knowledge Mobilization | 2020-01-16 | Jacquie Eales, Choong Kim, "Angus Campbell", Janet Fast |
| Designing Technology that Cares: Caregivers' Experiences Drive the Design Process (Infographic)This infographic was developed following the DATcares trans-disciplinary workshop that was held in Waterloo Ontario in June 2017 as a joint WP2 and WP3 initiative.
University of Alberta, University of Waterloo | KTEE - Knowledge Mobilization | 2018-04-03 | Jacquie Eales, Janet Fast, Jennifer Boger |
| How does technology help caregivers?Co-created with Catherine Suridjan, Director of Policy and Knowledge Translation with Carers Canada, and in recognition of caring Canadians, the two-page infographic highlights caregivers' experiences with technology. It was released on April 6, 2021 as part of National Carers Day, promoted on social media, and posted on the Carers Canada and Vanier Institute of the Family websites.
https://www.carerscanada.ca/wp-content/uploads/2021/04/Caregivers-Experiences-with-COVID-and-Technology-EN-FR.pdf University of Alberta, Canadian Home Care Association, Other | KTEE - Knowledge Mobilization | 2021-04-06 | Jacquie Eales, Nadine Henningsen |
| Research recap: Beyond "snapshots" to "lifetimes" of family careCo-created in partnership with Nathan Battams at the Vanier Institute of the Family, the research recap highlights the five empirically-derived care trajectories across the life course based on our analysis of the 2012 General Social Survey.
The article is accessible on the Vanier Institute of the Family web site: https://vanierinstitute.ca/resources/research-recaps/
As of February 25, 2020, the article has been accessed 460 times, 267 page views of blog version, and 193 PDF downloads. On Twitter it reached 1,122 and on Facebook it had 27 engagements (likes and retweets). University of Alberta | KTEE - Knowledge Mobilization | 2019-06-25 | Janet Fast, Norah Keating, Jacquie Eales, Choong Kim, "Yeonjung Lee" |
| Young Caregivers (age 15-19) in Canada2-page infographic written by Jamie MacDonald, Jacquie Eales and Janet Fast, in consultation with community and government partners including members of youngcaregivers.ca, based on analyses of Statistics Canada’s 2012 General Social Survey on Caregiving and Care Receiving. Funding provided by Roger S. Smith Research Award and AGE-WELL NCE.
The infographic was released on October 1 in recognition of International Day of the Older Person. https://rapp.ualberta.ca/wp-content/uploads/sites/49/2019/09/2019-10-01-Young-Caregivers-in-Canada-infographic.pdf
University of Alberta | KTEE - Knowledge Mobilization | 2019-10-01 | Jamie MacDonald, Jacquie Eales, Janet Fast |
| Provide evidence to Age Friendly Edmonton ageism infographicsLeading up to the UN International Day of Older Persons on October 1, 2020, Age Friendly Edmonton requested some statistics on the contributions older adults make to society in terms of caregiving, volunteerism and charitable giving. I provided relevant information, including findings based on our analysis of the 2012 General Social Survey on caregivers aged 65+. The infographic is available at https://www.growolderwithme.net/ University of Alberta | KTEE - Knowledge Mobilization | 2020-10-01 | Jacquie Eales |
| National Carers Day 2020WP2.4 were part of the 2020 National Carers Day campaign and Caregiver Resource Expo organized by Carers Canada. We contributed one pre-recorded presentation by Janet Fast on Caring across the life course, eight videos and one infographic that reinforced the themes of connecting, empowering and supporting caregivers. On April 7, 2020 alone (the day of National Carers Day) there were 2,126 visits to the NCD page (85% of whom were new visitors) from the following countries: Canada, USA, UK, France, Belgium and Australia. The videos will be available as on-demand that are accessible throughout 2020. Link was included to AGE-WELL NCE. https://www.carerscanada.ca/nationalcarergiverday/
We also partnered with Huddol and Teva Canada to create an infographic about improving caregivers everyday lives through technology and 24 social media assets. Teva Canada paid for a graphic designer. The infographic was posted on Huddol who were also instrumental in recruiting caregivers. The infographic was also emailed to individuals who helped with recruitment including Ron Beleno, Sharon Anderson and Arlene Astell. The infographic was posted to the RAPP website.
Individual emails were sent to 400 (of 600) caregivers who participated in our online survey thanking them for their caregiving, sharing the infographic and findings, and letting them know about resources available if they're feeling lonely or isolated. One caregiver replied saying: " Your email made me cry and made my day. Bless you."
The infographic (and social media assets for advocacy organizations) were also emailed to organizations who helped with recruitment including Caregivers Alberta Early Onset Dementia Alberta, Vanier Institute of the Family, AGE-WELL, Alberta Seniors and Housing, Young Caregivers Association, CARP.
University of Alberta | KTEE - Knowledge Mobilization | 2020-04-07 | Jacquie Eales |
| CanWheel: Improving Power Wheeled Mobility for Older Canadians University of British Columbia, Université de Montréal, Université Laval | Scientific Excellence - Leadership | 2016-03-01 | Bill Miller, Ben Mortenson, Paula Rushton, "P Viswanathan", Francois Routhier, "RL Kirby" |
| Economics of family caregiving to persons with dementiaInvited presentation to the Provincial/Territorial pre-conference symposium on Dementia, Calgary, AB. University of Alberta | Scientific Excellence - Leadership | 2015-10-23 | Norah Keating, Janet Fast |
| Interface design for a shared control, tele-operated power wheelchair. University of British Columbia | Scientific Excellence - Leadership | 2014-08-20 | Emma Smith, Bill Miller, Ben Mortenson, "A Mihailidis ", "P Viswanathan", "J Lo ", "P Pham" |
| Long-Term Care Facility Residents’ Initial Experiences and Perceptions of Intelligent Power Wheelchairs Université de Montréal, University of British Columbia | Scientific Excellence - Leadership | 2016-03-01 | Paula Rushton, Ben Mortenson, "P Viswanathan", "R Wang", "LH Clark", Bill Miller |
| Precedent-based research for Assistive Technologies (AT): Introducing Innova, a digital application and database to analyze existing products and services for older adultsThis article reports on the interdisciplinary design and development of a digital application and database that serves to collect and analyze assistive technologies (AT) currently available to family/friend caregivers who provide unpaid care to older adults in Canada. AT devices/services currently on the market serve as precedents in the sense that they can inform the design of new AT devices/services that suit the needs of caregivers. As such, the devices/services become a kind of 'materialized design knowledge' that is a significant kit of information that acts as sources of inspiration for designers. The general aim of this project is to pool and examine information about AT precedents that support caregivers and care recipients in a variety of domains of daily life - health, daily living, safety, entertainment and mobility so that designers, innovators, researchers and a variety of other stakeholders can improve existing AT devices/services and create new AT devices/services that suit caregivers' needs. The tool and database reported in this paper consists of a smart phone/tablet application and a web site which contains a user-centred survey, application interface, and feedback features. The details of the surveys and feedback features provides in-depth information including material and immaterial AT device and service attributes that will inform future innovation and design of AT devices/services for caregivers. This presentation will provide an in-depth account of the rationale, design/development, and design implementation of the digital tool and database of AT devices/services for older adults. University of Alberta | Scientific Excellence - Leadership | 2017-03-02 | Carlos Fiorentino, Megan Strickfaden, Mackenzie Martin, Janet Fast, Jacquie Eales |
| Precedent-based Research: A Step towards Innovating Assistive Technologies to Support Aging Well University of Alberta | Scientific Excellence - Leadership | 2015-10-25 | Megan Strickfaden, Hui Ren, Mackenzie Martin, Janet Fast |
| Smart Wheelchairs in Assessment and Training: A Consensus Workshop University of British Columbia, McGill University, Université Laval | Scientific Excellence - Leadership | 2016-03-01 | "P Viswanathan", "RH Wang", "A Sutcliffe", "L Kenyon", "Foley G", "M Adams", "P Archambault", "B Black", "J Blain", "M Bresler", "S Cotarla", "Y Demiris", "Ed Giesbrecht", "P Gardney", "P Gryfe", "K Hall", "C Mandel", "K McGilton", "F Michaud", Ian Mitchell, Ben Mortenson, "L Nilsson", Joelle Pineau, Emma Smith, "E Zambalde", "D Zondervan", Francois Routhier, "T Carlson", "L Kirby", "R Simpson", Bill Miller, "A Mihailidis" |
| A review of scales for assessing the risk of developing a pressure ulcer in individuals with SCI. | Scientific Excellence - Advancing Knowledge | 2008-03-01 | W.B. & Miller Mortenson |
| A survey of stakeholder perspectives on exoskeleton technology. | Scientific Excellence - Advancing Knowledge | 2014-12-01 | J. Parker Labron |
| A systematic reviewof therapeutic interventions for pressure ulcers following spinal cord injury. | Scientific Excellence - Advancing Knowledge | 2009-02-01 | M.A. Regan |
| A taxonomy of the economic costs of family care to adultsA systematic scoping review was conducted to evaluate the current state of knowledge of the economic costs incurred by family caregivers to adults with long-term health problems or disabilities. A narrative synthesis of 126 articles published since 1999 was undertaken to develop a taxonomy of the economic costs experienced by these caregivers. Three broad domains of sources of economic costs for caregivers were identified: employment consequences, out-of-pocket expenses and caregiving labor, with sub-categories within each domain. Economic outcomes were identified for each cost domain. Generation of new knowledge across the three cost domains has been uneven, with disproportionate interest in employment consequences. There are knowledge and methods gaps around all of the domains of care arising from failure to measure, or measure consistently, the costs; failure to account for contexts within which care is delivered; and lack of consistency in specifying care thresholds influencing labor force exit and employment consequences. An expanded research agenda on costs of family care should address cumulative and cross-domain care costs. Links between economic and social and health costs are fertile ground for a comprehensive understanding of the full costs of family care. University of Alberta | Scientific Excellence - Advancing Knowledge | 2014-10-15 | Norah Keating, Janet Fast, "Donna Lero", "Sarah Lucas", Jacquie Eales |
| Association between mobility, participation, and wheelchair-related factors in long-term care residents who use wheelchairs as their primary means of mobility. | Scientific Excellence - Advancing Knowledge | 2012-07-01 | Mortenson WB, Miller WC, Backman CL, Oliffe JL |
| Beyond the passive recipient:Advancing social identity in residential care. | Scientific Excellence - Advancing Knowledge | 2014-11-01 | 1579 |
| Caregivers’ experiences with the selection and use of assistive technologyQualitative data from a mixed-methods clinical trial are used to examine caregivers’ experiences with the selection and use of assistive technology to facilitate care recipients’ independence. Through a thematic analysis of interviews from 27 caregivers, three broad themes were identified. “A partial peace of mind” described the generally positive psychological impacts from assistive technology, mainly reduced stress and a shift in caregiving labour from physical tasks to a monitoring role. “Working together” explored the caregivers’ experiences of receiving assistive technology and the sense of collaboration felt by caregivers during the intervention process. Finally, “Overcoming barriers“ addressed two impediments to accessing assistive technology: lack of funding and appointment wait times for service providers. The findings suggest that assistive technology provision by prescribers plays a beneficial role in the lives of caregivers, but access to such benefits can be hampered by contextual constraints. University of British Columbia, University of Ottawa, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-09-16 | Ben Mortenson, Alex Pysklywec, "Fuhrer, M. J.", Jeff Jutai, Michelle Plante, Louise Demers |
| Challenges and strategies pertaining to recruitment and retention of frail elderly in research studies: a systematic review. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-03-01 | Véronique Provencher, Ben Mortenson, Tanguay-Garneau L, Bélanger K, Dagenais M |
| Client-centred, community-based care for frail seniorsCompared with nursing home care, community care, which is often viewed in Canada as care at home, is assumed to be best for older adults with chronic disease or disabilities since it is seen as client-focused and less costly. As the number of frail seniors living in the community increases, governments in Canada seek to provide alternate models of nursing home care. As part of a larger initiative meant to increase the scope of community programmes, a demonstration project was conducted in western Canada to evaluate the implementation of client-centred, community-based residential care with individuals requiring nursing-home-level care. The present authors explore two main implementation challenges: whether care that is responsive to individual preferences can be provided to people who cannot assume active decision-making roles; and whether care can be centred in the community if people are living in residential care settings rather than in their own homes. Focus groups were conducted with two key stakeholder groups with varying informal (family members) and formal (programme staff) relationships with residents living in three new programmes. From content analysis, the programmes appeared successful in conveying the importance of recognising residents as individuals and of keeping them connected to the community, but fell short of implementation expectations. Three themes illustrate the challenges: (1) engaging with others in a care partnership; (2) responding to residents' preferences and care needs with limited resources; and (3) maintaining residents' connections with the community. To improve the feasibility of these programmes, some changes could be pursued within existing financial resources. However moderating the funding to bring it somewhat closer to nursing home levels could support the sustainability of community-situated programmes for frail seniors. University of Alberta | Scientific Excellence - Advancing Knowledge | 2003-01-01 | S A Chapman, Norah Keating, Jacquie Eales |
| Commentary on "ICF from an occupational therapy perspective in adult care: an integrative literature review." University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2012-09-01 | Ben Mortenson, Claudine Auger, Bill Miller |
| Development and preliminary evaluation of the caregiver assistive technology outcome measure. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-05-01 | Ben Mortenson |
| Discharge criteria and follow-up support of Canadian dementia care units | Scientific Excellence - Advancing Knowledge | 2015-03-01 | Bishop AM, Mortenson WB |
| Effects of an assistive technology intervention on older adults with disabilities and their informal caregivers: an exploratory randomized controlled trial. (I received a CIHR-Institue of Ageing award for best post-doctoral poster for this research). University of British Columbia, Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2013-04-01 | Ben Mortenson, Louise Demers, Fuhrer MJ, Jeff Jutai, Lenker J, DeRuyter F |
| Exploratory validation of a multidimensional power wheelchair outcomes toolkit. | Scientific Excellence - Advancing Knowledge | 2015-05-01 | W Mortenson |
| Final commentary for CJA supplemental issue: the hidden costs of care2 page viewpoint, no abstract University of Alberta | Scientific Excellence - Advancing Knowledge | 2008-01-01 | Janet Fast, Jacquie Eales, Norah Keating |
| From ‘Needs’ to ‘Goals’: Evolving the User Centered Design process for technology supporting family caregiversIn this paper we describe adjustments to a particular software design process aimed at developing technology to support family caregivers. Our case study focuses on the co-design of a smartphone application to assist caregivers in managing and coping with the work of caring for older adults. We use the specifics of this case study to shed light on the technology development benefits of framing user-centered design (UCD) through caregivers’ goals rather than their needs. We show how this re-framing of the co-design process away from a deficit, or needs-based approach and towards a strength, or goal-oriented approach is central to developing technologies that caregivers are more likely to commit time and resources to learning and integrating into their lives. University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2018-07-31 | Myles Leslie, Jacquie Eales, Janet Fast, Ben Mortenson, Oladele Atoyebi, Akram Mahani |
| Grey spaces: The wheeled fields of residential care. (This paper received a CIHR Age+ award). | Scientific Excellence - Advancing Knowledge | 2012-03-01 | Mortenson WB, Oliffe JL, Miller WC, Backman CL |
| How assistive technology use by individuals with disabilities impacts their caregivers: a systematic review of the research evidence. University of British Columbia, Université de Montréal, University of Ottawa | Scientific Excellence - Advancing Knowledge | 2012-11-01 | Ben Mortenson, Louise Demers, Fuhrer MJ, Jeff Jutai, Lenker J, DeRuyter F |
| Issues for theSelection of Wheelchair-Specific Activity and Participation Outcome Measures: AReview | Scientific Excellence - Advancing Knowledge | 2008-06-01 | W.B. Mortenson |
| Life course trajectories of family careMore than 30 years ago, Elder (1985) theorized multiple life course trajectories in domains such as family and work, punctuated by transitions that create the structure and rhythm of individual lives. We argue that in the context of population ageing, family care should be added as a life course domain. We conceptualise life courses of family care with core elements of ‘care as doing’ and ‘care as being in relationship’, creating hypothetical family care trajectories to illustrate diversity of life course patterns of care. The framework provides a basis for considering influences of care on cumulative advantage/disadvantage for family carers.
As of February 25, 2020 the article has had nearly 2500 abstract views and 400 full text downloads. It was picked up by 5 news outlets and tweeted by 28.
The article was also named one of the top 5 articles published in 2019 in the International Journal of Care and Caring! University of Alberta | Scientific Excellence - Advancing Knowledge | 2019-04-13 | Norah Keating, Jacquie Eales, "Laura Funk", Janet Fast, "Joohong Min" |
| Longitudinal Outcomes Among Family Caregiver's of Power Mobility UsersObjective
To examine the change over 1 year in the burden, wheelchair skills, social support, social participation, and mental health of family caregivers providing assistance to older adult powered wheelchair users.
Design
Longitudinal study.
Setting
Community.
Participants
Participants (N=35) included family caregivers (mean age ± SD=63.7±10.2y) who provided at least 2 hours of general care per week for a powered wheelchair user.
Intervention
Not applicable.
Main Outcome Measures
The Power Mobility Caregiver Assistive Technology Outcome Measure (frequency of care and subjective burden), the Wheelchair Skills Test Questionnaire for caregivers (wheelchair skills), the Interpersonal Support Evaluation List-6 (social support), the Late-Life Function and Disability Instrument (social participation), the Hospital Anxiety and Depression Scale (mental health). Measures were taken at baseline, 1, 3, 6, and 12 months. Descriptive statistics were calculated, and a linear mixed model was used to assess changes over time in the outcomes.
Results
The results showed that the caregivers helped on average with 3 powered wheelchair-related activities and 10 other caregiving activities. They also experienced moderate subjective burden and social participation and were within the normal range for depression and anxiety. Moreover, those outcomes remained stable over the 1-year study period. However, the wheelchair skills scores showed significant changes over time, as the scores improved during the first 6 months of the study.
Conclusion
Given that previous research indicated that subjective burden tends to decline over time among caregivers, the findings of stability in this study may reflect increasing needs among this population of caregivers, who may benefit from additional support and interventions. This would need further consideration. University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2018-10-26 | Delphine Labbé, Ben Mortenson, Paula Rushton, Louise Demers, Bill Miller |
| Measurement properties of the late life disability index among individuals who use power wheelchairs as their primary means of mobility. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2014-05-01 | Ben Mortenson |
| Measurement properties of the wheelchair outcome measure in individuals with spinal cord injury. University of British Columbia | Scientific Excellence - Advancing Knowledge | 2011-09-01 | Bill Miller, Garden J, Ben Mortenson |
| Measuring wheelchairintervention outcomes: Development of the wheelchair outcome measure University of British Columbia | Scientific Excellence - Advancing Knowledge | 2007-09-01 | Ben Mortenson, Miller W C & Miller-Polgar J |
| Mixed methods research in occupational therapy: A survey and critique | Scientific Excellence - Advancing Knowledge | 2009-12-01 | Mortenson WB, Ollife J |
| No place like home? Surveillance technologies and the meaning of home among older adults. KITE Research Institute at University Health Network | Scientific Excellence - Advancing Knowledge | 2015-05-01 | Mortenson WB, Andrew Sixsmith, & Beringer R. |
| Overarching principles and salient findings for inclusion in guidelines for power mobility use within residential care facilities. | Scientific Excellence - Advancing Knowledge | 2006-02-01 | Mortenson WB, Miller WC, Boily J, Steele B, Crawford EM, Desharnais G |
| Perceptions of power mobility use and safetywithin residential facilities. | Scientific Excellence - Advancing Knowledge | 2005-06-01 | W.B. Mortenson |
| Power and client-centred practice: An insider exploration of occupational therapists' experiences. | Scientific Excellence - Advancing Knowledge | 2006-12-01 | Mortenson WB, Dyck I |
| Power mobility with collision avoidance for older adults: User, caregiver and therapist perspectives. | Scientific Excellence - Advancing Knowledge | 2013-12-01 | R.H. Wang |
| Predictors of mobility among wheelchair using residents in long-term care. | Scientific Excellence - Advancing Knowledge | 2011-10-01 | Mortenson WB, Miller WC, Backman CL, Oliffe JL |
| Prevalence and facility level correlates of need for wheelchair seating assessment among long-term care residents. | Scientific Excellence - Advancing Knowledge | 2012-01-01 | Giesbrecht EM, Mortenson WB, Miller WC |
| Prevalence and predictors of need for seating intervention and mobility for persons in long-term care. | Scientific Excellence - Advancing Knowledge | 2007-01-01 | Bourbonniere MC, Fawcett LM, Miller WC, Garden J, Mortenson WB |
| Ready to roll? Mobility and social participation among wheelchair users in residential care | Scientific Excellence - Advancing Knowledge | 2010-12-01 | Mortenson WB |
| Reliability and validity of the telephone administration of the wheelchair outcome measure (WhOM) for middle-aged and older users of power mobility devices. Université de Montréal, Université Laval | Scientific Excellence - Advancing Knowledge | 2010-06-01 | Claudine Auger, Louise Demers, Gélinas I, Francois Routhier, Mortenson WB, Miller WC |
| Restoring independence through technology. | Scientific Excellence - Advancing Knowledge | 2014-01-01 | Demers L & Mortenson B |
| Satisfaction with participation using a manual wheelchair among individuals with spinal cord injury. Université de Montréal, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2010-09-01 | Paula Rushton, Bill Miller, Ben Mortenson, Garden J |
| Seeking resilience: the care capacity goals of family carers and the role of technology in achieving themAbstract
Background
As global populations age, governments have come to rely heavily on family carers (FCs) to care
for older adults and reduce the demands made of formal health and social care systems. Under
increasing pressure, FCs’ resilience and the sustainability of their unpaid care work have become
pressing issues. Using qualitative data, this paper explores FCs’ care-related work goals, and
describes how those goals do, or do not, link to technology and the idea of resilience.
Methods
We employed a sequential mixed-method approach using focus groups followed by an online
survey about FCs’ goals. We held 10 focus groups and recruited 25 FCs through a mix of
convenience and snowball sampling strategies. Carer organizations helped recruit 599 FCs from
across Canada to complete an online survey. Participants’ responses to an open-ended question
in the survey were included in our qualitative analysis. An inductive approach was employed
using qualitative thematic content analysis methods to examine and interpret the resulting data.
We used NVIVO 12 software for data analysis.
Results
We identified two care quality improvement goals of FCs providing care to older adults:
enhancing and safeguarding their caregiving capacity. To enhance their capacity to care, FCs
sought: 1) foreknowledge about their care recipients’ changing condition, and 2) improved
navigation of existing support systems. To safeguard their own wellbeing, and so to preserve
their capacity to care, FCs sought to develop coping strategies as well as opportunities for
mentorship and socialization.
Conclusions
We conclude that a paradigm shift is needed to reframe caregiving from a current deficit frame
focused on failures and limitations (burden of care) towards a more empowering frame
(sustainability and resiliency). The fact that FCs are seeking strategies to enhance and safeguard
their capacities to provide care means they are approaching their unpaid care work from the
perspective of resilience. Their goals and technology suggestions imply a shift from
understanding care as a source of ‘burden’ towards a more ‘resilient’ and ‘sustainable’ model of
caregiving. Our case study findings show that technology can assist in fostering this resiliency
but that it may well be limited to the role of an intermediary that connects FCs to information,
supports and peers. University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta | Scientific Excellence - Advancing Knowledge | 2019-10-31 | Myles Leslie, Robin Gray, Jacquie Eales, Janet Fast, Andrew Magnaye, Akram Mahani |
| Social consequences of family care of adults: a scoping reviewThe power of social connections is a contemporary focus of research across world regions. Yet, evidence of challenges to carers' social relationships remains fragmented and underexplored. We conducted a scoping review of 66 articles to create a state-of-knowledge review of the social consequences of caring. Findings indicate evidence of consequences for relationships with care receivers, with other family members and with broader social networks. Knowledge gaps include changes in relationships across time and in understanding diversity in the types and extent of consequences. Evidence challenges assumptions related to caregiving families and to the sustainability of family care. University of Alberta | Scientific Excellence - Advancing Knowledge | 2017-01-01 | Norah Keating, Jacquie Eales |
| Social consequences of family care to adults: A scoping reviewThe power of social connections is a contemporary focus of research across world regions. Yet evidence of challenges to carers' social relationships remains fragmented and underexplored. We conducted a scoping review of 66 articles to create a state of knowledge review of social consequences of caring. Findings indicate evidence of consequences to relationships with care receivers, with other family members and to broader social networks. Knowledge gaps include changes in relationships across time and in understanding diversity in types and extent of consequences. Evidence challenges assumptions related to caregiving families and to the sustainability of family care. University of Alberta | Scientific Excellence - Advancing Knowledge | 2017-06-01 | Norah Keating, Jacquie Eales |
| Stakeholders’ perspectives related to the development of a scooter training program. | Scientific Excellence - Advancing Knowledge | 2014-08-01 | Mortenson WB, Hoag E, Higgins R, Emery R, & Joyce L. The second |
| Sustainable Care: Theorising the wellbeing of caregivers to older personsThe term ‘care crisis’ is invoked to denote chronic system failures and bad outcomes for the people involved. We present a comprehensive wellbeing framework and illustrate its practicality with evidence of negative outcomes for those who provide care. We find evidence of substantial material and relational wellbeing failures for family carers and for care workers, while there has been little interest in carers’ views of their ability to live the life that they most value. Understanding and improving wellbeing outcomes for carers is an essential component of sustainable care, which requires the wellbeing of the different actors in care arrangements. University of Alberta, University of Sheffield | Scientific Excellence - Advancing Knowledge | 2021-11-01 | Norah Keating, "Allister McGregor", Sue Yeandle |
| Taking control with tilt-in-space wheelchairs: An exploratory study of their use in residential care University of British Columbia | Scientific Excellence - Advancing Knowledge | 2015-03-01 | Shankar S, Ben Mortenson, & Wallace J The first |
| The care capacity goals of family carers and the role of technology in achieving themAs global populations age, governments have come to rely heavily on family carers (FCs) to care for older adults and reduce the demands made of formal health and social care systems. Under increasing pressure, sustainability of FC’s unpaid care work has become a pressing issue. Using qualitative data, this paper explores FCs’ care-related work goals, and describes how those goals do, or do not, link to technology.
The article is open access. University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-02-27 | Myles Leslie, Robin Gray, Jacquie Eales, Janet Fast, Andrew Magnaye, Akram Mahani |
| The impact of technology on informal caregivers | Scientific Excellence - Advancing Knowledge | 2011-01-01 | Mortenson WB |
| The positive effects of caregiving for family caregivers of older adults: A scoping reviewThe negative social, psychological, physical health, and employment-related effects of caregiving on caregivers are well documented; however, positive effects have received less attention. A scoping review was conducted to synthesize and thematically analyze the results of 24 studies published between 2000 and 2018 regarding positive effects of family caregiving of older adults. Our analysis revealed that positive effects of caregiving are embedded in complex, interconnected relationships. Identified themes were: 1) In relationship with one’s self (the caregiver) described positive effects such as personal growth; 2) In relationship to the care-recipient described positive effects such as a deepened dyadic relationship, and 3) Relationships with others described positive effects such as those derived from new care-related relationships. Seeing the positive effects of caregiving as relational and in relationship may shape environmental factors, as defined by the International Classification of Functioning, Disability and Health, such as the development of assistive devices and social policy. Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, Université de Montréal, University of British Columbia, University of Alberta, Université Laval | Scientific Excellence - Advancing Knowledge | 2020-02-04 | Alex Pysklywec, Michelle Plante, Claudine Auger, Ben Mortenson, Jacquie Eales, Francois Routhier, Louise Demers |
| The power(s) of observation: Theoretical perspectives on surveillance technologies and older people Simon Fraser University | Scientific Excellence - Advancing Knowledge | 2013-11-01 | Mortenson WB, Andrew Sixsmith, Woolrych R |
| The relationship between and predictors of quality of life after spinal cord injury at 3 and 15 months after discharge. | Scientific Excellence - Advancing Knowledge | 2010-01-01 | Mortenson WB, Noreau L, Miller WC |
| The role of information and communication technology (ICT) in end-of-life planning among a sample of Canadian LGBT older adults
| Scientific Excellence - Advancing Knowledge | 2019-09-12 | "S. Mock", "E. P. Walker", "A. Humble", "G. Gutman", "G. Gahagan", "L. Chamberland", "P. Aubert", "J. Fast" |
| The treatment of myofascial hip pain in patients with acetabular labral tears: A single subject research design study | Scientific Excellence - Advancing Knowledge | 2014-08-01 | Cashman G, Mortenson WB, Gilbart M Dr. Cashman is a MRSc graduate that I supervsied. |
| The wheelchair outcome measure: A client-specific assessment of wheelchair seating intervention | Scientific Excellence - Advancing Knowledge | 2006-06-01 | Mortenson WB, & Miller WC |
| The Wheelchair Procurement Process: Perspectives of clients and prescribers | Scientific Excellence - Advancing Knowledge | 2008-09-01 | W.B Mortenson, W.C Miller |
| Towards sustainable family care: Using goals to re-frame the user-centred design of technologies to support carersTechnology has been identified as an important strategy in making caring sustainable. This article takes the design process for carer support technology as a lens on the divergent definitions that are in play when governments, technology developers and carers contemplate ‘sustainability’. We argue that a central impediment to finding a productive point of overlap among the three perspectives is a predominant focus on carers’ needs. We contrast this needs-based approach, and its focus on doing the tasks of care, with a goal-oriented approach focused on being in relationships. Reframing the conversation around goals is important to achieving truly sustainable caring. University of Leicester, Johns Hopkins Medicine, University of Calgary, University of Alberta, University of British Columbia | Scientific Excellence - Advancing Knowledge | 2019-08-19 | Myles Leslie, Jacquie Eales, Janet Fast, Ben Mortenson, Oladele Atoyebi, Akram Mahani |
| Trajectories of family care over the life course: evidence from CanadaAbstract: In the midst of a ‘care crisis’, attention has turned again to families who are viewed both as untapped care resources and as disappearing ones. Within this apparent policy/demographic impasse, we test empirically theorised trajectories of family care, creating evidence of diverse patterns of care across the life course. The study sample, drawn from a Statistics Canadian national survey of family care, comprised all Canadians aged 65 and older who had ever provided care (N=3299). Latent profile analysis
yielded five distinct care trajectories: Compressed Generational; Broad Generational; Intensive Parent Care; Career Care; and Serial Care. They differed in age of first care experience, number of care episodes, total years of care, and amount of overlap among episodes. Trajectories generally corresponded to previously hypothesised patterns but with additional characteristics that added to our understanding of diversity in life course patterns of care. The five trajectories identified provide the basis for further understanding how time and events unfold in various ways across life courses of care. A gap remains in understanding how relationships with family and social network members evolve in the context of care. A challenge is presented to policy makers to temper a ‘families by stealth’ policy approach with one that supports family carers who are integral to health and social care systems. University of Alberta | Scientific Excellence - Advancing Knowledge | 2020-01-08 | Janet Fast, Norah Keating, Jacquie Eales, Choong Kim, "Yeonjung Lee" |
| Validating the wheelchair outcome measure for residents in long-term care. | Scientific Excellence - Advancing Knowledge | 2013-04-01 | S. Parvaneh |
| Board Director, Vanier Institute of the Family (2020-2023)Dr. Norah Keating was appointed to the Board of Directors and Program Chair, Vanier Institute of the Family (2020-2023). University of Alberta | Scientific Excellence - Leadership | 2020-01-01 | Norah Keating |
| Calgary Herald article 'Not limited to adults': Many Canadian youth are caregiversArticle published in the Calgary Herald based on an interview with Janet Fast about young caregivers in Canada. University of Alberta | KTEE - Knowledge Mobilization | 2019-12-01 | Janet Fast |
| Calgary Sun article 'Not limited to adults": Many Canadian youth are caregivers, says UofA researcherArticle was published in the Calgary Sun, based on an interview with Janet Fast about young caregivers in Canada. Article was written by Jason Herring. University of Alberta | KTEE - Knowledge Mobilization | 2019-12-01 | Janet Fast |
| Caregivers need some care themselvesOp Ed article published in the Vancouver Sun on November 23, 2016: http://vancouversun.com/opinion/opinion-caregivers-need-some-care-themselves?ct=t%28December+2016+news_2016-12-09%29&mc_cid=dbf9da42e8&mc_eid=%5BUNIQID%5D Vanier Institute of the Family, University of Alberta | KTEE - Knowledge Mobilization | 2016-11-23 | Nora Spinks, Janet Fast |
| Cracks to Chasms: The shaky foundations of unpaid care that Canada's health care system is built onJanet Fast's research on unpaid care in Alberta was quoted in Part 1 of this four-part series published in the Edmonton Journal. | KTEE - Knowledge Mobilization | 2021-04-22 | "Elise Stolte" |
| Dementia sets lives adriftBruce Grierson (Illustrations by Hugh Syme) July 28 Dementia sets lives adrift. Research is finding a better way forward: Reimagining the way we care for people https://www.ualberta.ca/newtrail/featurestories/2018/august/dementia-sets-lives-adrift
This article written by Bruce Grierson won a writing award! University of Alberta | KTEE - Knowledge Mobilization | 2018-07-28 | Megan Strickfaden |
| Edmonton Journal article 'Not limited to adults': Many Canadian youth are caregivers, says UofA researcherJanet Fast was interviewed by Jason Herring for an article on young caregivers in Canada. The article, 'Not limited to adults': Many Canadian youth are caregivers, says UofA researcher, appeared in the Edmonton Journal on December 1, 2019.
This original article was picked up by several other newspapers including the Edmonton Sun, Calgary Sun and Calgary Herald. University of Alberta | KTEE - Knowledge Mobilization | 2019-12-01 | Janet Fast |
| Edmonton Sun article 'Not limited to adults': Many Canadian youth are caregivers, says UofA researcherArticle published in the Edmonton Sun about young caregivers in Canada based on an interview with Janet Fast. University of Alberta | KTEE - Knowledge Mobilization | 2019-12-01 | Janet Fast |
| Using technology to support caregivers of older people with dementiaThis article was undertaken as part of a WP2 KTEE initiative in year 5 on behalf of its four core research projects. We submitted an article for The Conversation Canada, which was subsequently published.
Story pitch: Caregiving takes a significant toll on the nearly half million Canadians caring for a family member or friend with dementia. While research and innovation are essential for effective implementation of the Dementia Strategy for Canada, so too is getting the right balance between ‘tech’ and ‘touch’.
University of Alberta, Université de Montréal, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | KTEE - Knowledge Mobilization | 2019-09-16 | Janet Fast, Jacquie Eales, Louise Demers, Michelle Plante |
| Dementia Care by DesignThe running time of this film is 33:00 minutes. It is an ethnographic documentary film that highlights some of the research accomplished at de Hogeweyk (Dementia Village) in the Netherlands in Feb 2015. University of Alberta | Product | 2015-10-01 | "Nicole Gaudet", Megan Strickfaden, "Stephen Hope" |
| Goals vs Needs: What Caregivers WantDr. Janet Fast and Dr. Myles Leslie were interviewed by Jenna Roddick for an APPTA MileAGE podcast, sharing findings from their most recent study and collaboration on caregivers' goals.
Here is the link to their MileAGE podcast: https://podcasts.google.com/?feed=aHR0cHM6Ly9taWxlYWdlcG9kY2FzdC5saWJzeW4uY29tL3Jzcw&episode=NTRjZDhlZjIyZDliNDc1Mjg3NzU2YTYxNzliYzQ4ZjU&hl=en-CA&ved=2ahUKEwiz7O3q-YrmAhWUNX0KHfKoDtkQjrkEegQIARAG&ep=6&at=1574876963081 University of Alberta, University of Leicester, Johns Hopkins Medicine, University of Calgary, | KTEE - Knowledge Mobilization | 2019-09-30 | Janet Fast, Myles Leslie, Jenna Roddick |
| WP2 Promotional VideosSPECIAL WP2 PROJECT -
Alex Pysklywec is an experienced research assistant who worked with WP2 Core Project Leads as well as some of the short term project researchers to produce promotional videos representing the ongoing work of WP2. A total of 7 videos were made highlighting both the core projects, the nature of family caregiving, and 2 short term projects.
The work was completed by December 2017.
Louise Demers, one of the WP2 leads, oversaw and supported the project.
Université de Montréal, University of British Columbia, Université Laval, Research Institute of the McGill University Health Centre, Toronto Rehab Institute, University Health Network, University of Waterloo, University of Alberta, Toronto Rehab Institute/University Health Network | KTEE - Knowledge Mobilization | 2017-12-01 | Louise Demers, Alex Pysklywec, Ben Mortenson, Francois Routhier, Claudine Auger, Sara Ahmed, Jan Polgar, Frank Rudzicz, Jennifer Boger, Janet Fast, Jacquie Eales, Tilak Dutta, Andrew Magnaye |
| A snapshot of Canadians caring for persons with dementia: The toll it takesFACTS are research summaries that are intended for a broad-based audience comprised primarily of policy makers, practitioners, and advocates. The content of each brief is topical, often integrating research findings across projects. FACTS are available on the RAPP web site.
This particular research brief provides a snapshot of the lives of Canadians caring for a family member with dementia and the health, social and financial impacts they experience based on analysis of the 2012 Statistics Canada General Social Survey. University of Alberta | Scientific Excellence - Advancing Knowledge | 2015-10-16 | Jacquie Eales, Choong Kim, Janet Fast |
| Rhodes ScholarshipAGE-WELL undergraduate RA (WP2.4), Mackenzie Martin, has been awarded a Rhodes Scholarship! In the University of Alberta announcement about the award, Mackenzie mentions her RA position with AGE-WELL. https://www.ualberta.ca/agriculture-life-environment-sciences/alesnews/2017/november/human-ecology-student-wins-2018-rhodes-scholarship | HQP Training | 2017-11-24 | Mackenzie Martin |
| Petro Canada Roundtable on the Future of Caregiving in CanadaPetro Canada has identified caregiving as a national priority and has made a long term commitment to support this important social issue. They recently established a new charitable organization to ensure caregivers are given the support they need.
Organized by impakt, on behalf of Petro Canada, Jacquie Eales was invited to participate in a virtual roundtable where leaders in the caregiving space discussed how to best support carers and nurture a community of caring. As a caregiver advocate and research manager, my name was put forward by Mark Stolow of Huddol.
As part of the preparations for the roundtable, impakt conducted a survey of the main factors that need to be considered when having a national conversation about supporting caregivers. Key findings from this survey fed into the roundtable conversations and the position paper that was written, informed by input of participants, will help the new charity begin to improve awareness of the conditions and support needed for caregivers across Canada.
On November 20, 2020 Petro-Canada launched its new foundation (Petro-Canada CareMakers Foundation), a philanthropic organization to help organizations who support family caregivers across the country, and the report from the roundtables, available here: https://futureofgood.co/petro-canada-caremakers-foundation/ Suncore Energy is promising to invest $10 million over 5 years into supporting caregiver organizations across the country. The aim to bring awareness and support to the essential work of caregivers.
University of Alberta | KTEE - Knowledge Mobilization | 2020-09-29 | Jacquie Eales |
| Alberta Continuing Care Act legislative review inputTo support the healthcare system, vulnerable Albertans, and caregivers, Caregivers Alberta – in conjunction with the Alberta Caregivers Focused Coalition (a strategic alliance of 63 organizations in Alberta committed to improving support for caregivers) – we were invited to, and provided input on, modernizing the Continuing Care Act in Alberta. Our submission aimed to improve caregiver wellbeing by enshrining five principles, to the extent possible, within the new Act. The following principles speak to the core of our proposal:
1) That caregivers should be referenced in legislation in a way that allows them to access continuing care services;
2) That continuing care services enable caregivers to achieve outcomes that support them in their daily caregiving activities;
3) That reflects a holistic definition of caregiver wellbeing that encompasses physical, psychological, social and material outcomes;
4) That caregivers be considered the best judges of what constitutes well-being for them;
5) That decisions about the provision of supports consider and respect caregivers’ other linked life
circumstances (e.g., other caregiving responsibilities, family responsibilities, living circumstances, etc.)
The Facility-Based Continuing Care Review Recommendations Report was released on May 31, 2021 and will be going to Cabinet for consideration in the fall of 2021 along with a detailed action plan on how to implement the recommendations. Despite the evidence presented, and our expressed concerns about the impact of client-directed care (also known as self-managed care) on family caregivers, the provincial government decided to implement client-directed care across the province. That being said, they are well aware of the need to reduce the administrative burden on caregivers, and as a result, they have enlisted Alberta Blue Cross to complete the administrative pieces of the program. Alberta Blue Cross is reportedly very good at this work and creating streamlined programs. Clients/families will steer how they want services delivered, and the agency can direct bill up to the assessed hours. They are starting with a demonstration project in Edmonton, including conducting focus groups with clients/families to hear their feedback.
More work will be needed as recommendations are considered and implemented. University of Alberta, Caregivers Alberta | KTEE - Knowledge Mobilization | 2021-02-17 | Janet Fast, Sandy Sereda |
| Designing Technology that Cares: Caregivers' Experiences Drive the Design Process (Research Brief)This research brief was developed following the DATcares trans-disciplinary workshop that was held in Waterloo Ontario in June 2017 as a joint WP2 and WP3 initiative.
URL: University of Alberta, University of Waterloo | KTEE - Knowledge Mobilization | 2018-04-03 | Jacquie Eales, Janet Fast, Jennifer Boger |
| Informing Bill C-220, Compassionate Bereavement BillJanet Fast provided research evidence to inform MP Matt Jeneroux's Private Members Bill C-220, Compassionate Bereavement Bill. As Matt Jeneroux wrote: "This bill has been the result of a lot of hard work over the past year-and-a-half and I appreciate everyone who’s taken the time to meet, to offer feedback and suggestions and to check in on its progress." All parties supported the merit of this bill which passed all three readings in the House of Commons with unanimous votes, and the Senate. The Bill is awaiting Royal Assent. University of Alberta | KTEE - Knowledge Mobilization | 2021-05-12 | Janet Fast |
| Life course trajectories of family care: Implications for care policyWe wrote a one-page Research Policy Snapshot for the Canadian Research Data Centre Network (CRDCN) based on findings from analyzing the 2012 General Social Survey on Caregiving and Care Receiving and the policy implications of this research. The Research Policy Snapshot was a new initiative of the CRDCN to facilitate knowledge mobilization to policy analysts. We worked iteratively with CRDCN over several months on this new initiative as they developed a template. Our research policy snapshot and supplementary information was included in the inaugural digest, volume 1, number 1 in January 2022.
Karolina Jalowska retweeted the post on AGE-WELL's Twitter and LinkedIn accounts.
https://crdcn.ca/app/uploads/2022/01/Life-course-trajectories-of-family-care-Implications-for-care-policy-Jan-2022.pdf University of Alberta | KTEE - Knowledge Mobilization | 2022-01-31 | Jacquie Eales, Janet Fast |
| AGE-WELL – WP 2.1 INToCARE Poster presented by Michelle Plante at the 2015 Annual Conference and Annual General Meeting. University of British Columbia, Université Laval, Université de Montréal, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal | Scientific Excellence - Advancing Knowledge | 2015-10-23 | Ben Mortenson, Francois Routhier, Claudine Auger, Janet Fast, Louise Demers, Paula Rushton, "andrew", Michelle Plante |
| AT-SELECT: Understanding the issues around adoption of e-decision support for self-selection of assistive technology by elders Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-10-23 | Vanessa Chenel, Manon Guay, Jeff Jutai, Ben Mortenson, Peter Gore, Annette Leibing, Garth Johnson, Claudine Auger |
| Social, ethical and cultural issues around the adaptation and the adoption of an e-decision support system for self-selection of assistive technologies by elders: A study protocol Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2015-10-25 | Vanessa Chenel, Manon Guay, Jeff Jutai, Ben Mortenson, Peter Gore, Annette Leibing, Garth Johnson, Claudine Auger |
| Technological and ethical acceptability of an online decision support application for the self-selection of assistive technologies by older Canadians: A research protocol Université de Sherbrooke, University of Ottawa, University of British Columbia, Université de Montréal | Scientific Excellence - Advancing Knowledge | 2016-05-13 | Vanessa Chenel, Manon Guay, Jeff Jutai, Ben Mortenson, Peter Gore, Garth Johnson, Claudine Auger |
| International exchange to Sheffield UniversityAndrew Magnaye, doctoral HQP, spent part of the summer (May-July 2019) engaged in an international exchange with partners from the ESRC-funded Sustainable Care team at Sheffield University in the UK. Funding to support the international exchange was secured through Mitacs International, the World Universities Network (WUN), and AGE-WELL NCE. One of the key objectives of the exchange was to connect with members of the Sustainable Care: Connecting People and Systems research programme led by Professor Sue Yeandle. This research group comprises academics from seven universities as well as a network of academic partners in fifteen countries, to take a global and future-oriented look at current approaches to the care needs of adults living at home with chronic health problems or disabilities. Andrew also attended the Debating the Future of Work Conference organized by the International Labour Organization and the University of Sheffield Management School's Centre for Decent Work. He also had the opportunity to participate in a WUN workshop with international partners from the UK, Canada, Ireland, Ghana, Poland and Australia to develop innovative project ideas around the shifting migration of care. The exchange was capped off by a trip to Copenhagen where he attended the 4th Transforming Care conference which focused on Changing Priorities - The Making of Care Policies and Practices. | HQP Training | 2019-07-15 | Andrew Magnaye |
| CBC Interview about young caregivers in CanadaJanet Fast was interviewed by Josee St-Onge from CBC about young caregivers in Canada on September 26. The interview was aired on Oct 1, International Day of the Older Person, as part of releasing an infographic about young caregivers (aged 15-19) in Canada who provide care to a family member or friend with a chronic health condition, disability or aging-related needs. University of Alberta | KTEE - Knowledge Mobilization | 2019-10-01 | Janet Fast |
| Caregiving's ripple effect on relationshipsVideo produced in collaboration with Kim Chapman, a caregiver from Calgary AB whose 58 year old husband has Fronto-Temporal Degeneration, and members of WP2.4 and 2.9. Mark Stolow also reviewed and commented on this video. This is the second of three videos co-created with Kim about how caregiving impacts her relationships with other people. University of Alberta, University of Leicester, Johns Hopkins Medicine, University of Calgary, HUDDOL | Product | 2019-09-03 | Jacquie Eales, "Kim Chapman", Myles Leslie, Janet Fast, Mark Stolow |
| Doris, an enduring care trajectoryCo-creation of a video with Caregivers Alberta about Doris, a caregiver whose pattern of caregiving across her life course reflects that of an enduring care trajectory. University of Alberta | Product | 2020-03-12 | Jacquie Eales, "Lisa Adams" |
| Find Your Ron A video created for National Carers Day 2018 - April 3rd - created by caregivers for caregivers. http://www.carerscanada.ca/awareness-national-carers-day-2018/ Independent, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, University of Waterloo | Product | 2018-04-03 | "Mike Auty", Ron Beleno, Jacquie Eales, Michelle Plante, Jennifer Boger |
| Lisa, a serial caregiverCo-creation of a video with Caregivers Alberta about Lisa, whose pattern of caregiving across her life course reflects that of a serial care trajectory. University of Alberta | Product | 2020-03-12 | Jacquie Eales, "Lisa Adams" |
| Sally, an encore care trajectoryCo-creation of a video with Caregivers Alberta about Sally, whose pattern of caregiving across her life course reflects that of an encore care trajectory. University of Alberta | Product | 2020-03-12 | Jacquie Eales, "Lisa Adams" |
| We Are All CaregiversA video that was created for National Carers Day 2018 created by caregivers for caregivers.http://www.carerscanada.ca/awareness-national-carers-day-2018/ Independent, University of Alberta, Centre de recherche de l'Institut universitaire de gériatrie de Montréal, University of Montreal, University of Waterloo | Product | 2018-04-03 | "Mike Auty", Ron Beleno, Jacquie Eales, Michelle Plante, Jennifer Boger |
| Wendy, an all at once care trajectoryCo-creation of a video with Caregivers Alberta about Wendy, whose pattern of caregiving across her life course reflects that of an all at once care trajectory. University of Alberta | Product | 2020-03-12 | Jacquie Eales, "Lisa Adams" |
| Working Overtime: Career vs CareVideo produced in collaboration with Kim Chapman, a caregiver from Calgary AB whose 58 year old husband has Fronto-Temporal Degeneration, and members of WP2.4 and 2.9. This is the first of three videos co-created with Kim about how caregiving impacts her ability to participate in the paid labour force. University of Alberta, University of Leicester, Johns Hopkins Medicine, University of Calgary | Product | 2019-09-03 | Jacquie Eales, "Kim Chapman", Myles Leslie, Janet Fast |
| Wrennie, a late bloomer care trajectoryCo-creation of a video with Caregivers Alberta about Wrennie, whose pattern of caregiving across her life course reflects that of a late bloomer care trajectory. University of Alberta | Product | 2020-03-12 | Jacquie Eales, "Lisa Adams" |
| Supporting People who Juggle Work and Caregiving: Challenges and SolutionsJanet Fast and Johnna Lowther from Caregivers Alberta participated in the AGE-WELL Public Webinar Series on November 7, 2019 to talk about Supporting People who Juggle Work and Caregiving: Challenges and Solutions.
Description: Caregivers are an important part of AGE-WELL’s community - from participating in projects to providing advise at the network level. In this webinar, participants:
· Learned about the challenges Canadians face when they have a dual role of working and caregiving
· Discovered technology-based solutions and practices that can help caregivers
· Understood the importance of recognizing this unpaid workforce and the value they add to our economic and healthcare systems
The webinar was well received, with a strong majority of those who completed the follow-up evaluation indicating that the information presented in the webinar was very or extremely useful and an even stronger majority that they were very or extremely likely to share the recording with a friend.
The webinar was recorded and is posted online at https://www.youtube.com/watch?reload=9&v=szznr9pHk2g&feature=youtu.be University of Alberta | KTEE - Knowledge Mobilization | 2019-11-07 | Janet Fast, "Johnna Lowther" |
| WP2 page on RAPP web siteOur AGE-WELL projects are listed on our Research on Aging, Policies and Practice web site at https://rapp.ualberta.ca/research/ and our KM products created are listed on https://rapp.ualberta.ca/snapshot-of-aging/ University of Alberta | Product | 2019-09-03 | Jacquie Eales |
| Caregiving for older adults with disabilities: Present costs, future challengesCommissioned paper for the Institute for Research on Public Policy No 58, December 2015. University of Alberta | Scientific Excellence - Advancing Knowledge | 2015-12-16 | Janet Fast |
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